Motor Neurone Disease
Motor Neurone Disease (MND) is a life-threatening illness. People with MND, their families and carers need access to a broad range of services that assist with the physical, psychological, emotional and spiritual impacts of the disease. Palliative care can provide many of these elements.
The MND Program aims to increase access of people with MND to palliative care. It assists palliative care services to manage and support people living with MND.
Lee-Anne Henley – Motor Neurone Disease Shared Care Worker
Lee-Anne has extensive experience as a palliative care clinician and educator with significant understanding of the issues that people with MND and their families face.
- Current Activities:
Palliative care services can apply to receive up to $2000 top-up funding if they have a client with Motor Neurone Disease. This is available to:
- Inpatient Palliative Care Services and
- Community Palliative Care services
Applications for this funding are available at the Motor Neurone Disease Association.
For any assistance with applications in the Southern Metropolitan Region please contact email@example.com
Lee-Anne provides education, information, resources and support about Motor Neurone Disease and Palliative Care for health professionals.
- What is MND?
- Fronto-temporal dementia in MND
- Non- invasive ventilation management and care
- Conversations about palliative care- communications skills to assist appropriate palliative care referrals
Program of Experience in Motor Neurone Disease (PEM)
This is an annual placement program, organised in collaboration between the consortium, Calvary Healthcare Bethlehem and the Motor Neurone Association of Victoria.
Up to four palliative care professionals per year undertake a four day placement in the specialist services. Participants identify their learning needs and are supported to improve their understanding of best practice with regard to MND. This skill development and knowledge is then taken back into their palliative care agency and used to support, resource and educate their colleagues.
MND podcast series
Before her retirement, MND Shared Care Worker, Robyn Reid, produced a number of podcasts on MND and the various aspects of its management. The series will be released at regular intervals and made available on the SMRPCC website.
As well as listening to the podcasts, a transcript of each podcast can be downloaded for free and kept for your future reference.
If you work in aged care or primary health and have a client with MND, these podcasts will help you to better understand the illness and improve your care.
To listen, simply click on the title of the podcast below:
- #1 – Presentation, diagnosis and clinical decision-making (download the transcript here)
- #2 – Secretion management and dysphagia (download the transcript here)
- #3 – Respiration and Non Invasive Ventilation (download the transcipt here)
- #4 – Frontotemporal dementia in MND (download the transcript here)
- #5 – Communication in MND (download the transcript here)
- #6 – Carers of people with MND (download the transcript here)
- #7 – Sexuality, MND and palliative care (download the transcript here)
- #8 – Maintaining hope (download the transcript here)
**All podcasts available on the PodBean App which can be downloaded for free from the Apple App Store or Google Play to your phone or PC and provides easy access to a variety of video and audio podcasts. To find our audio podcast(s) simply search for and follow SMRPCC’s Podcasts.
Basics of Non-Invasive Ventilation
MND patients may in the course of their illness experience hypoventilation as a result of the progression of their disease. This may require them to undergo testing and as a result they may be fitted with Variable Positive Air Pressure (VPAP) ventilation. As their condition deteriorates, they will become more and more dependent on it. This module provides basic information about the management of the MND patient and their NIV equipment in the home environment.
CLICK HERE! to open the learning module.
To view MND resources CLICK HERE!