Our Resources
Background
The consortium has developed resources to meet the needs of palliative care professionals in the southern metro region of Melbourne.
Talking about palliative care
What is Palliative Care? | Webcast
This 6-minute webcast created by our previous MND Shared Care Worker, Robin Reid, is a quick introduction to palliative care. It explains:
- the types of supports and services offered by palliative care providers
- how palliative care can empower patients, their carers and loved ones
- the benefits of early referral
- the referral processes and models of care.
Talking with the community | Promoting Quality of Life – Speakers Kit
The Speakers Kit is designed to help palliative care services train volunteers and staff to deliver talks to community groups.
The kit includes information for palliative care services, tips for public speaking, ideas for handouts and a PowerPoint presentation that speakers can use.
- Promoting Quality of Life | Speakers Kit – PDF
- Promoting Quality of Life | Speakers Kit – PowerPoint presentation
Talking with clinicians | Palliative Care Conversations – A train-the-trainer resource
A train-the-trainer resource to teach referral to palliative care. SMRPCC developed this program help train clinicians in generalist health services to:
- understand the palliative care sector better
- improve their skills to have conversations with clients around referral to palliative care.
It includes a facilitators guide, a session plan, a PowerPoint presentation and handouts. It can be used by experienced palliative care staff to train their non-palliative care colleagues.
In May 2024 we updated Palliative Care Conversations with a focus on Parkinson’s Disease. You can view or download the updated documents here:
Aged Care
Resources
While the consortium has developed resources that are helpful for the aged care setting, these make more sense in the context of aged care, so please refer to our Aged Care page.
SMRPCC’s Aged Care page
Visit our Aged Care page for information about our current initiatives and for resources directly related to aged care.
Disability
Fact sheets | Group homes
These fact sheets are aimed at staff working in group homes. They are also useful for other palliative care staff who have clients in group homes.
- What is palliative care?
- Advance care planning
- Care planning for palliative care
- Coroner investigations
- Bereavement in a group home
- Advocating for people with a terminal illness in a group home
- The process of dying
- End-of-life conversations
- Care and dying where the resident chooses
- Consent and decision making for medical treatment
SMRPCC’s Disability page
Visit our Disability page for information about our current initiatives and for resources directly related to palliative care and people living in group homes.
Motor Neurone Disease
MND podcast series
Our previous MND Shared Care Worker, Robyn Reid, produced a number of podcasts on MND and its management, before her retirement. The podcasts and transcripts are available on SMRPCC’s website.
If you work in aged care or primary health and have a client with MND, these podcasts will help you better understand the illness and improve your care.
To listen to the podcasts, or read a transcript, click on the links below:
- MND Podcast 1 — Presentation, diagnosis and clinical decision-making
- MND Podcast 2 – Secretion management and dysphagia
- MND Podcast 3 – Respiration and Non-invasive Ventilation
- MND Podcast 4 – Frontotemporal dementia in MND
- MND Podcast 5 – Communication in MND
- MND Podcast 6 – Carers of people with MND
- MND Podcast 7 – Sexuality, MND and palliative care
- MND Podcast 8 – Maintaining hope
- MND Podcast 9 – Health & wellbeing for health professionals
MND – Information for the Palliative Care Team
New staff in palliative care services may not have come across people with MND. This package is designed to help new staff care for people with MND and their family or carers.
MND – Information for the Palliative Care team includes:
- information and education about MND and its management
- a list of contacts and resources for health professionals
- an example of a nursing care plan for someone with MND
MND – Information for the Aged Care Team
A quick and practical guide for staff in Aged Care who work with a person who has Motor Neurone Disease.
MND – Information for the Aged Care Team includes a nursing care plan, relevant for residential aged care.
Basics of Non-Invasive Ventilation (NIV)
MND patients may experience hypoventilation as a result of the progression of their disease. This may require them to undergo testing and as a result they may be fitted with Variable Positive Air Pressure (VPAP) ventilation. As their condition deteriorates, they will become more and more dependent on it.
The Basics of Non-Invasive Ventilation learning module provides basic information about the management of the MND patient and their NIV equipment in the home environment.
SMRPCC’s MND & Parkinson’s Disease page
Visit our MND & Parkinson’s Disease page for information about our current initiatives and for resources about palliative care in relation to MND and other neurological conditions.
Parkinson’s Disease
SMRPCC’s Parkinson’s Disease Resource Suite
In May 2024 we relaunched our suite of Parkinson’s Disease documents, with updated links to other resources and a new look. You can view or download the updated documents here:
- Deterioration in Parkinson’s Disease
- Parkinson’s Disease – Issues for the Aged Care Team
- Parkinson’s Disease – Issues for the Palliative Care Team
- Parkinson’s Disease – Palliative Care Conversations
- Parkinson’s Disease – Palliative Care Conversations-Facilitators Guide
SMRPCC’s MND & Parkinson’s Disease page
Visit our MND & Parkinson’s Disease page for information about our current initiatives and for resources about palliative care in relation to Parkinson’s Disease and other neurological conditions.
Consider the Carer
Consider the Carer | A resource for clinicians
We developed this resource to help clinicians understand the practical and financial issues that people experience when caring for someone with a terminal illness. The latest (April 2024) edition of Consider the Carer includes a list of relevant and useful resources.